We finally had our appointment in Jackson with the urologist to discover what the abnormality was/is that showed up on the tests run on her in December.
I was not impressed with the doctor up there at all.
We saw two docs, a young one who possibly was a med student and the old ugly doctor Harman who was about as friendly as a viper.
The young one walks in, asks where is her film, we tell him, he leaves. A few minutes later he walks in and says with no explanation at all:
We recommend doing the balloon procedure again up against doing invasive surgery where we'd go in and repair the problem.
huh?
You haven't even told us WHAT the abnormality is dude.....
Oh yes, he replies--she has reflux at 1%. We scale them 1-5 and she's at 1 which indicates the balloon is deteriorating and no longer working. We hoped she'd outgrow this......we? You weren't even here when she had the first procedure done, how can you say WE?
Then he tell us Dr. Harmon will be in a few. Eventually old codger comes in and says ......we'll set up to do the balloon. Turns around and walks out!
Stacie and I just look at each other.
Then a nurse? or some woman walks in with a calendar book and says June is the earliest they can do.
I protest because Shandi will have to stay on the antibiotic until them.
She scrounges around in her handy dandy calendar and finally says.....I think we can work her in May.......how's May 20th?
I was a bit snippy when I said...Ma'am, I suppose we have to take what we can get, now don't we?
We were advised that she'd have to wait because they take the little babies first due to no food or drink after midnight.
She assured me that someone would call prior to the 20th of May to give us a time to be there. BUT, if we haven't heard from them by the week before to call up there. Yeah....I've tried that before and it takes days to actually get to the department you need.
*grins* ok, all you wanted to know was the results!!!!!!!!!!!
But the balloon procedure is really a piece of cake. They put her to sleep, insert a catheter, shoot the chemical compound that makes up the balloon into the catheter...she wakes, potties, keeps some clear liquids down and is sent home.
Showing posts with label kidney reflux/deflux. urinary tests. Show all posts
Showing posts with label kidney reflux/deflux. urinary tests. Show all posts
Wednesday, March 25, 2009
Wednesday, December 17, 2008
Shandi
Monday, Shandi had to go the hospital in McComb for some kidney tests. Although everything appeared ok it wasn't. The doctor's office called today and said there were some abnormalities and they were referring her to the specialist in Jackson.
Bless her heart, she did the tests like a trooper, one of which involves inserting a catheter and running the dye through it while they watch it do it's thing.
She also had the sonogram done on her urinary parts and Stacie said it was almost funny when they told her to pee....Shandi asks, Where? The nurse said.....right there on the bed.
Said Shandi looked at her like she was nutz!!!!!!!!!
But please keep the baby in your prayers.
For those who don't know, Shandi was diagnosed with kidney reflux as a baby. She stayed on low strength antibiotics for several years. Then the docs did a balloon procedure which stopped the urine from backing up into bladder. This had kept her from having urinary tract infection until this year....so the tests were ordered to check things out.
Bless her heart, she did the tests like a trooper, one of which involves inserting a catheter and running the dye through it while they watch it do it's thing.
She also had the sonogram done on her urinary parts and Stacie said it was almost funny when they told her to pee....Shandi asks, Where? The nurse said.....right there on the bed.
Said Shandi looked at her like she was nutz!!!!!!!!!
But please keep the baby in your prayers.
For those who don't know, Shandi was diagnosed with kidney reflux as a baby. She stayed on low strength antibiotics for several years. Then the docs did a balloon procedure which stopped the urine from backing up into bladder. This had kept her from having urinary tract infection until this year....so the tests were ordered to check things out.
Monday, December 15, 2008
Shandi and the urinary tests
Well, Shandi had to go for a renal test and a VCUG test today to determine if the balloon procedure they did several years ago is still in place. She had kidney reflux/deflux and this procedure was done, which involved inserting a type of material that form a balloon to stop the leakage back into her bladder.
She used to scream bloody murder when they did the VCUG test because it not only involved inserting the catheter into her but also this huge exray machine coming down toward her appearing, to her, I'm sure, as though it would crush her.
I prepared her by explaining exactly what would be done to her, about how it would feel and told her that if she could simply not fight them it would hurt less and go much quicker.
Stacie took the day off to take her, since Terry is up in Tennessee and Alabama picking up trees. Shandi did wonderful, not crying or fighting. The balloon is still in place, so all is well there. This means that the occasional urinary track infections she has are not due to the balloon collasping.
She's grown so much. From being able to go to the dentist and march in there all alone to get her teeth worked on, to having these tests done. I can't help but wonder if her improvement in this area is not due in part to the removal of the wicked step father who forced her to watch him have her older sister perform oral sex on him. I will always believe that what he subjected that child to played a huge part in her fears of having certain medical procedures done to her. It makes me very angry just to think of all that baby carries around in her mind, trying to deal with it and unable to verbalize the pain she is in.
But I am very grateful that he is no longer in their life, he is locked away in prison. She is growing and changing and becoming quite an accomplished little girl. Oh my heart swells with pride thinking about the progress she has made.
She used to scream bloody murder when they did the VCUG test because it not only involved inserting the catheter into her but also this huge exray machine coming down toward her appearing, to her, I'm sure, as though it would crush her.
I prepared her by explaining exactly what would be done to her, about how it would feel and told her that if she could simply not fight them it would hurt less and go much quicker.
Stacie took the day off to take her, since Terry is up in Tennessee and Alabama picking up trees. Shandi did wonderful, not crying or fighting. The balloon is still in place, so all is well there. This means that the occasional urinary track infections she has are not due to the balloon collasping.
She's grown so much. From being able to go to the dentist and march in there all alone to get her teeth worked on, to having these tests done. I can't help but wonder if her improvement in this area is not due in part to the removal of the wicked step father who forced her to watch him have her older sister perform oral sex on him. I will always believe that what he subjected that child to played a huge part in her fears of having certain medical procedures done to her. It makes me very angry just to think of all that baby carries around in her mind, trying to deal with it and unable to verbalize the pain she is in.
But I am very grateful that he is no longer in their life, he is locked away in prison. She is growing and changing and becoming quite an accomplished little girl. Oh my heart swells with pride thinking about the progress she has made.
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