Choice, chance, change
Make a choice
To take a chance
or life never changes.
During my last appointment with my pulmonary doc, he asked for a sputum sample. I was so proud when i was able to produce that for him on September the 20, ....and even got results from it to the Iris (online doctor portal) by mid week.
However, my pride soon turned to aggravation and frustration and thus the details of that follow....along with some happies thrown in here and there..
Friday 9/27/13 Happy Birthday, Ana. Got call from Health Department…coming by Monday morning for some bloodwork due to the results of my latest sputum tests which according to Iris were…. Moraxella (branhamella) catarrhalis
Beta lactamase positive.
Heavy growth
I looked all this up on the internet and didn't find a thing that was troublesome nor related to the tuberculosis bacteria.
On Friday the 27th the local Health Department called and wanted to come by on Monday, 9/30/13 to take some blood work and get their own sputum. On Monday, the nurse came by and rather than do a skin test for TB, she said she was drawing blood as that would give her/them a more intensive/complete result. She also said if I couldn't give her a sputum sample that was ok. I didn't.
I asked why all this and she stated because of my prior diagnosis with the mycobacterium being in the TB family they had to do this. I asked even if this latest sputum didn't test positive for that and she said it was all in the same family.
Saturday 9/28/13 Watered nursery, Terry and Bruce went to resevoir fishing, started working in office cleaning it up, Ana, Cheyenne and I went with Pat and Ronnie to Dempseys for Ana's birthday. Went to bed around 9..fell asleep…woke around 11 when Terry came home…went back to sleep..woke around 1:30 so here I am updating computers and typing away.
Of course all this time I cannot go anywhere and if I do I have to wear a mask. The only place I have been since the 27th is to keep my appointment with the ENT, Dr. Thompson on the 1st of October at which I wore a mask the health department nurse provided.
I called on Friday the 4th and all my blood came back fine but nothing on the culture. When I questioned that she said they were growing a culture from the sputum I collected for Dr. V and it could take a while.
Again today, Monday, October 7, 2013, I called for results on that culture and nothing. When I research the culture for tuberculosis, I find it can take up to 6 weeks to grow.
10/9/13 I still haven't heard from the HD and have a Balance test at Dr. Thompson's office at 9:30. I go to it, keeping Ana out of school and taking her with me just for company and another pair of eyes. I have reached a point I don't trust myself and my eyes. I went through the balance test…whoa!!!! Big old set of goggles on my face that by the end of the test was causing a headache, following red dots across a light bar and up and down a light bar, staring at red dots, turning head and being laid back quickly from all angles, then warm air blown into each ear with a 5 minute rest between blowings, then cold, then a repeat of the warm air in the left ear which seemed to be the worst….I was/am worn out.
We leave the doctor's office and I am pulling into a parking space at the mall when the Health Department calls. I am released from isolation but am still a suspect, so be cautious about whom I'm around until we know the sputum doesn't grow anything awful or mysterious!!!!!! Imagine green slime with glowing purple overlay!!!!! hehehehehehehe
Ana and I try out Newt's for lunch; our first time there. Yep, this is a keeper. We ordered the shrimp po-boy--she got the full po-boy with chips and I got a half with a Caesar Salad. Taste was wonderful, dining area clean, plenty of choices on the condiment/oil/vinegar bar--yep, a keeper.
From there we went to Sam's and picked up a couple things, then to Columbia and Walgreen's for meds, and of course by McD's for a caramel Frappe before heading home.
The nurse had told me not to come home and work in the yard to take it easy because she had put me through the mill. I came in expecting to at least take it easy until time for Prayer meeting when Stacie text and wanted me to bring her some gas. She had run out of gas in the bike just below the school. Of course, I had to go buy gas because someone always leaves the cans empty; so after doing that and an interesting conversation with Ana on the way about her mom and a job, we delivered mom her gas and made it back home just in time for the phone to ring and after that, visitors and then another phone call and now, finally 3 hours after arriving home the house has calmed down just a bit.
Went into the hospital on August 18th with inflammed lungs and virtually no air movement. Stayed through Wednesday, August 21. I was given massive (for me) doses of Steroids, which in turn ran my sugar up, (I am not diabetic) made my heart race and gave me a killer headache. I came home with a step down dose of Prednisone--20, 15, 10, and 5 mg. As time went on I began to feel better but still hadn't gotten totally up to par. But, not being able to just 'be' on Sept 3,4 and 5 I took the books out of the hall book shelf, cleaned it well and proceeded to paint it with the same yellow as the hall.
Of course I chose to not use the kiltz as I knew the scent it had. I truly was/am trying to steer clear of all harmful fumes and irritants but a girl just has to get up and do sometimes.
So, on Friday the 6th I woke with a sore throat, that over all feeling of unwellness. I muddled through the day, went to the ballgame and set myself up to serve the nachos as I could sit between customers. I made it through the game even though I thought a time or two I would have to leave.
Saturday, Sept.7, I watered the nursery and cooked food for our Sunday dinner.
September 8, church, fed the missionary, home and took Star to meet her mom, back for a nap and church.
9/9/13 emailed Dr. V's office, described tightness in my chest, not feeling well, informed them I was seeing NP on Tuesday.
9/10/10 Saw Chris (NP). Diagnosed sinusitis. I had coughed up some nasty stuff that morning. He said to take the Ativan for the inner ear as my ears were still full of fluid and added Mucinex D which I have yet to find.
9/11/13 Began using nasal rinse, flonase, along with albuteral in nebulizer, spireva and q var; allegra, hormone and prilosec. This would be my routine from here on. I did water the fern house, picked a bucket of peas, shelled, blanched and froze them, sold some trees. Went to bed around 8.
9/12/13 woke up around3/4 o'clock coughing, surprising loose. Finally got up and took cough med..had and continue to take a dose each night at bedtime. Woke back up @ 6, got up, did meds; put on mask and mowed about 30" in the yard, pulled a few weeds in flowerbed, finished bookshelf--put shelves in and books on shelf; did 2 loads laundrey.
9/13/13 Woke burning in respiratory area, sore, scratchy throat, head felt woozy. Remembered I had failed to take my ativan the night before. Took cough med, laid down around 8PM, fell sleep, woke every 2-3 hours but would go back to sleep.
Watered Greenhouse, picked peas. Before I was done picking the peas I felt woopy head, like going real fast down a high hill.
About 8PM began cough, cough, cough. Took cough med and finally coughed up some yellow stuff. Rubbed chest with vicks and took a pepperment @ 9.
9/14/13 Woke in a.m. coughing yellow stuff. Drove daughter to Jackson, back through Brookhaven to grocery shop and by sis in laws to drop Ana off. Felt rough, with dry cough, almost feverish by the evening; cold when I shouldn't have been cold. I laid down by 6PM, woke at 9 coughing, fixed a hot toddy(whiskey sour) used lemon, honey, water and whiskey) Took rest of meds and went to sleep
Sunday 9/15/13 Woke coughing and blowing yellow mucous. Made it to church but had to sit to teach my Sunday School class. All over feeling of weakness. After church and lunch I laid down and took a nap. Went back to church for some business and the Discipleship Class but left after that. Ate when I came in at 6 pm, fixed a hot toddy, drank it and laid down. Drifted off to sleep. Woke at 9pm coughing again, took cough med and ativan, still coughed for an hour before meds finally kicked in.
Monday 9/16/13 woke at 4, slept off and on till 6am. cough was more dry and some painful.
After breakfast and meds I watered the nursery, pulled few weeds at house, sprayed a bit of roundup on some weeds and cleaned food from shed refrigerator. I had/did feel some better on Monday. I took my meds around 8:30 9pm (cough med and ativan) and laid down. I began to have the feeling of if I even talked I would go into a coughing spasm. I tried pepermint. Then started coughing..finally got up at 10 and fixed another hot toddy. After drinking it I went on to sleep.
I am noticing a connection between what I do and how I feel the next day. If I am at the nursery, or if I pull even 5 weeds, or spray roundup 5 minutes or do anything that involves problem smells, chemicals, molds, mildews, pollen, dust, etc then the next day I am down for the count. Because…
Tuesday 9/17/13 I woke coughing up yellow stuff and feeling tight and painful in my chest. My head feels whoopy and I can barely get myself going this morning although I have emptied the water from the defrosted shed refrig, put the towels I left to soak up extra water on to wash, emptied the litter pan and fixed a bite of breakfast.